Claire Poulalhon

As specialist in Public Health, I have been directing the National Registry of Childhood Hematological Malignancies (RNHE) since January 2025 and have been working more broadly within the National Registry of Childhood Cancers (RNCE) since 2016. Affiliated with the Inserm OPPaLE team, I focus my work on the surveillance of childhood and adolescent cancers and on epidemiological research in pediatric oncology. As part of my PhD in epidemiology, I developed a systematic follow-up system for registry patients, combining clinical data, survey data, and data from the French National Health Data System (SNDS). This project, COHOPER, is part of the Childhood Cancer Observation Platform (HOPE-EPI/CCOP), initially funded by the "Investments for the Future" Program and subsequently by the "2030 Cohort Plan". Its aim is to assess the long-term health status and quality of life of children with cancer—major public health issues—and ultimately to contribute to improving their care.