Our teams: EPICEA
Project manager, I am in charge of several aspects in the EPICEA team :
- National COHOrt of the PaEdiatric cancer Registries (COHOPER), backed on the French national pediatric childhood cancer (RNCE), part of the Childhood Cancer Observation Platform (CCOP).
- Exhaustive and permanent data collection of detailed treatments, therapeutic trajectories, response to treatments and events, througout the french territory (47 departments,~ 40 TRA, >40 000 cases).
- From design of data set, to development of database, managment of TRA team and quality controls…
- Research on late adverse events related to the disease or treatments in real world.
- Event free survival in real world
- Research on late adverse events related to the disease or treatments in real world.
- Event free survival in real world
Research interests
- Observational clinical research in paediatric oncology (trends in therapeutic strategies, adverse events related to treatments, Survival, EFS)
- Cohort - Long term follow up - Quality of life - Secondary prevention
- Data science
Key publications
- Poulalhon C, Vignon L, Idbrik L, Bernier-Chastagner V, Fabre M, Schleiermacher G, Dijoud F, Perrin C, Varlet P, Faure L, Guissou S, Désandes E, Hémon D, Berger C, Lacour B, Clavel J. Data Resource Profile: The French Childhood Cancer Observation Platform (CCOP). Int J Epidemiol. 2020 Oct 1;49(5):1434-1435k. doi: 10.1093/ije/dyaa048. PMID: 32642766.
View publication - Callec L, Lardy-Cleaud A, Guerrini-Rousseau L, Alapetite C, Vignon L, Chastagner P, Frappaz D, Faure-Conter C. Relapsing intracranial germ cell tumours warrant retreatment. Eur J Cancer. 2020 Sep;136:186-194. doi: 10.1016/j.ejca.2020.06.012. Epub 2020 Jul 22. PMID: 32711377.
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